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Tom and living without him

Entries in this blog

Friday 20th February

Everything is going OK for us this week. Tom has been feeling much better despite being in the low period of his chemo. He is on large doses of steroids which will causing him to feel extra well. Also after weeks of eating very little, he has managed fish, chips and mushy peas twice this week. We were at the hospital again this morning for the anticoagulant checks. He's still not quite there yet with the levels, but hopefully when we have the test done again on Monday, there will be a differen

BarbaraG

BarbaraG

Wednesday 18th February

Things are ticking over quite well for Tom and I at the moment. Today we go to the blood clinic at Nobles to have Toms blood clotting checked. We went on Monday and Tom still required daily injections by the district nurse as well as Warfarin. Tom is still doing well despite his set back and is eating better and full of humour. We had a new shower bath fitted last friday and a vanity unit yesterday. Our bathroom is small and about 9 years ago we decided to get rid of the bath and have just a s

BarbaraG

BarbaraG

Saturday 14th February

Tom came home yesterday afternoon and was going to write a blog today, but he's a little tired now. I know that people will be wondering what is happening and so after a hectic day so far, I will update you before I read the paper. Tom isn't too bad although the obstruction remains but is being controlled by steroids and chemotherapy which he had on Wednesday. His voice starts off well in the morning and deteriorates as the day goes on.The district nurse came today and again tomorrow to give hi

BarbaraG

BarbaraG

Thursday 12th February - With Update

I'm having trouble sleeping and thought now would be a good time to update you all on Toms progress. At present Tom is in ward 6 at Nobles. We will find out today if he has to fly over to Clatterbridge for emergency radiotherapy for an obstruction. Yesterday Tom had chemotherapy as planned, but whilst I was there I spoke to the nurse and told her of the troubles we have had over the past week. She questioned me further and decided that a doctor may need to check him out. When chemo had complet

BarbaraG

BarbaraG

Monday February 9th

I was wondering whether to write today or wait for a bit, but there are quite a few people wanting to know how we are fairing. Well we haven't had the best of weekends as Tom has been quite under the weather. We had to call the Emergeny Doctor late on Saturday for advice of how to handle the breathlessness that Tom was experiencing. He is pretty well managing at the moment and we've had the hospice nurse visiting us today. She is going to organise to physiotherapy & guidance on breathing to

BarbaraG

BarbaraG

Help Required

Ok, the blood tests are back and Toms haemoglobin is very low. That explains why he has been very breathless and not getting enough air in his lungs, very tired and today faint. This morning he woke up feeling well as he slept apart from our 4 a.m cuppa. He was raring to go but then got faint just after getting dressed. He recovered and has spent his morning writing his next Manx Tails entry. Anyway, I now need your help if possible to give me some suggestions on how I can get his blood levels

BarbaraG

BarbaraG

Tuesday 3rd February 2009

I have been getting emails from people wanting an update, Manxbird especially and so I have put my mind to doing it. Well things have been a bit hectic the past few days and the weather hasn't helped. For people off the Island, the snow hasn't been a problem for us over here. Some places have had snow settling on the ground, but in Castletown we have had the benefit of seeing the lovely white flakes floating through the air and melting on impact. The real bug bear has been the keen North Easterl

BarbaraG

BarbaraG

Some Encouragement

Its almost a week since Tom had his chemotherapy and after a dip, today he is starting to feel a little better. The first few days he felt quite well and he gradually got more tired and his chest became more problematic. I think Monday was his worst day and he is now improving. He was singing again this morning which I've said before, is my Tom barometer. When he initially went to the doctors in December, it was because he found a lump in his armpit. After a CT scan, it was found that the cancer

BarbaraG

BarbaraG

25th January 2009

I used to think Tom should think up different titles for his blogs instead of the date, but after sitting here staring out of the window as I try to dream up a title, I'm afraid I'm going to do the same. Well, Tom is doing OK after the chemotherapy. Obviously he is not as bouncy as he was the 1st time he had chemo, as his body has had quite a battering with the previous chemotherapy and especially the radiotherapy. He is eating better, but is tired and a little breathless. Apart from that, none

BarbaraG

BarbaraG

A Mixed Day

I'm so sorry I am late with an update, but its been a busy day. Tom woke this morning and was singing in bed for the 1st time for months. For those who don't know, Tom is a happy person who loves to sing and because of the news of the cancer returning and his dip in his health, his singing has been sorely missed. I've always loved the way he rides above everything and has a song in his heart. Anyway, it was back today with the realisation that he would be taking a step towards stopping the cance

BarbaraG

BarbaraG

Hopefully Very Soon

Well we are not long back from the hospital where Tom had to have blood tests to check he will be OK for chemotherapy on Wednesday. This was one of the few times we could jump the queue as people who are having, or about to have chemotherapy, have to keep away from public places so they are not exposed to any colds or viruses etc. Chemotherapy won't take place if Tom has a temperature or if any of his required blood levels as too low. It's a nervous time for him which only stops when the nurse

BarbaraG

BarbaraG

Humour Lifts The Moment

Well its a new day and we're both feeling better than this time yesterday. We had our usual middle of the night cuppa and then I went back to sleep. That is the bit that Tom doesn't manage. He has some discomfort that stops him staying in one position for too long. Yesterday alittle gadget arrived that I ordered for Tom last week. It is the visually impaired version of an ipod I suppose. It plays mps's, talking books, podcasts, records and can also have an addon to make labels that can be read

BarbaraG

BarbaraG

Frustration

Well, this is my 1st blog and unfortunately it isn't that upbeat. Tom has told me to leave it for now in case I show my anxiety and frustration too much, but I'm sure there are a few people waiting to know how we got on with the oncologist this morning. We set off for Douglas and got as far as Ballasalla when Tom received a phone call telling him his appointment was cancelled. The Flybe plane that brings in the oncologist once a week was cancelled and so was Toms appointment. We turned the car

BarbaraG

BarbaraG

Blogging Again

It has been the longest I have been without blogging or editing Toms Blog but now I will give a catch up.   First of all, who wants to read about how someone is struggling over Christmas, the New Year and Birthdays with depression. That was where I was at leading up to Christmas and after, continually dipping. I only started to come out of it last weekend. It isn't something people want to read on a blog or perhaps that I want to write in too much detail. One of the effects is a lack of motiv

BarbaraG

BarbaraG

Blogging Again

It has been the longest I have been without blogging or editing Toms Blog but now I will give a catch up.   First of all, who wants to read about how someone is struggling over Christmas, the New Year and Birthdays with depression. That was where I was at leading up to Christmas and after, continually dipping. I only started to come out of it last weekend. It isn't something people want to read on a blog or perhaps that I want to write in too much detail. One of the effects is a lack of motiv

BarbaraG

BarbaraG

I'll Start Again

It has been the longest I have been without blogging or editing Toms Blog but now I will give a catch up.   First of all, who wants to read about how someone is struggling over Christmas, the New Year and Birthdays with depression. That was where I was at leading up to Christmas and after, continually dipping. I only started to come out of it last weekend. It isn't something people want to read on a blog or perhaps that I want to write in too much detail. One of the effects is a lack of motiv

BarbaraG

BarbaraG

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